Health Voices Victoria
Health Voices Victoria is dedicated to strengthening the engagement of communities and people with lived experience in health and related sectors.
Vision
A future where the expertise of communities and of lived experience is valued and embedded into every effort to improve health and wellbeing.
Purpose
Health Voices Victoria’s purpose is to enable and improve the engagement of communities and people with lived experience within health and related sectors.
We advocate for high-quality engagement as standard practice, because transformation happens when the people the health system is designed to support have seats at the table as equal partners.
We contribute to building the trust, evidence, systems, skills and confidence needed to ensure this work leads to meaningful influence and lasting impact.
We work with a wide range of organisations and people and across multiple sectors related to health and wellbeing. This includes work in policy, service design, service delivery, training, evaluation and research.
Recruitment
We communicate regularly with our network of more than 2,000 highly engaged and diverse community members. We tailor recruitment campaigns to help you connect with the people you need to partner with in your project, organisation or initiative. We handle the selection process, ensuring a mix of perspectives and experiences, and we support clear and thoughtful communication before and after each opportunity.
Training & development
We create practical, inclusive and enjoyable learning experiences for anyone looking to build their skills and confidence in the art and science of community and lived experience engagement. Sessions range from short workshops to immersive programs and can be delivered online or in person. Topics include:
- Consumer and community involvement in research
- Trauma-informed engagement and facilitation
- Creating psychologically safe-enough environments
- Effective engagement on committees
- Co-design essentials
- Hosting community-led Kitchen Table Conversations
Lived experience and community engagement
We design and deliver engagement that is respectful, trauma-informed and grounded in genuine relationship-building. This includes advisory group formation and management, leading activities such as workshops, focus groups, interviews, surveys, and community-based approaches. We thoughtfully apply a mix of different levels of engagement depending on the project, the context, and the available time and resources. This ranges from consultation, through to co-design and consumer led initiatives. We will always call it what it is.
We often work alongside advocacy groups and grassroots partners to reach people who are seldom heard, and to tailor engagement so it genuinely suits the needs of different communities. Our work ranges in scale and duration from one-off engagements through to multi-year initiatives.
Co-design
We bring people together to build a shared understanding of what is needed and to shape solutions collectively from the very start of an initiative. We tailor each co-design process, drawing on different models to create a fit for purpose methodology that we implement and evolve as we go. Our approach always supports shared decision-making, carefully wrestles with power dynamics and creates space for different forms of expertise to interweave in meaningful ways. We evaluate and refine our approach as we go. Co-design takes time and resources — these projects unfold over many months, and often over several years.
Research partners
We help researchers involve communities and people with lived experience throughout the research cycle, from defining research questions that genuinely reflect community needs pre-grant, through to translating findings for broader impact. We can support researchers to create a practical consumer and community involvement plan for a research grant and can partner as part of the research team to enable and support this work if successful.
Engagement framework development and implementation support
We work with organisations to create or update Engagement Frameworks to guide their efforts to evolve and strengthen the engagement of people with lived experience and communities at all levels, through to governance. These are designed to be practical, values-driven and built through collaboration. Through workshops and iterative review, we identify strengths and gaps, articulate shared principles and develop a clear path toward meaningful engagement. We also provide support to put the Framework into practice, helping teams implement their Engagement Framework into day-to-day processes, behaviours and ways of working.
Whilst Health Voices Victoria is newly established, it is connected to a long history. We have evolved from the Health Issues Centre, which was Victoria’s peak organisation for consumer engagement in health for almost 40 years.
The Health Issues Centre story started in the early 1980s at a time when the prevailing culture in health was to do it for us, not with us. It was formally established as the peak health consumer agency in 1985. This was at a time when there were few, if any, seats at decision-making tables for community members or people with lived experience.
The organisation operated for 39 years as an avid champion for health consumers across the state but ceased service delivery on in March 2024 due to sustained financial challenges.
But in May 2024, a new chapter in this story commenced. Deakin University’s Institute for Health Transformation announced that it would be the custodian of the legacy created by the Health Issues Centre.
The establishment of Health Voices Victoria within Deakin marks a new era for community and lived experience engagement in Victoria.
Our values
We are curious
We respectfully seek and embrace diverse perspectives. With open minds and hearts, we listen deeply and value the inherent wisdom of each person with whom we work.
We are authentic
We individually and collectively reflect on our actions, and continuously learn and grow through our work. We recognise our privilege and potential biases, and encourage others to do so too.
We act with integrity
We are transparent and accountable for our actions.
We are inclusive and equitable
We recognise that some voices are hardly heard and work to engage in ways that are meaningful, safe and promote trust and healing. We place additional efforts into communities that face the biggest barriers to health and wellbeing due to being marginalised and discriminated against by systems and society.
We partner
We believe in the power of collective effort. Committed to collaboration, everything we do comes back to building trusted relationships. Through partnerships, alliances and networks, we share knowledge and resources and find solutions together. We avoid duplication and celebrate our own and others’ achievements. Instead of competitors, we see potential allies.
Alison Coughlan
Senior Manager
Consumer and community engagement has been a great passion for Alison for almost thirty years now. She feels that it is such a privilege to be the Manager of Health Voices Victoria, as she gets to work every day that she cares about so deeply with many amazing human beings.
I have always wanted to make a difference through my work. I started my career in immunology research, working in a lab, and very early on I can remember it feeling like such a long distance between the work | was doing and meaningful change for people. That and a significant health issue in my early 20s made me reassess where I was at. I chose to study public health and the thread of meaningful work and transformative change has been a feature of the further steps I have taken in my career since then.
In 1997, early in my career in public health, I joined the team at BreastScreen Victoria where I worked for 7 years. This was when I first learnt on the ground about consumer and community engagement. It was embedded into all elements of our work; our governance and the expertise of consumers was valued equally with that of clinicians and leaders in our services. It was also a time when the breast cancer advocacy movement was gaining momentum, and I had the privilege of working alongside Lyn Swinburne as the Breast Cancer Network Australia took form. I was inspired and emboldened by the incredible women that I was working with at the time, and we started pushing the boundaries of consumer and community engagement practice all those years ago. I’ve been hooked ever since.
Family is so important to me and it’s just as well as I have a large one. My partner Nick and I have a blended family with five daughters and a new addition this year, our granddaughter Daisy. Add in a few partners, extended family and friends and you’ll find me in my happy place, cooking up a storm and feeding all the people! Nourishing others nourishes me!
That teaching lights me up. I recently had the opportunity to participate as a guest speaker in two Uni lectures and I loved it and would like to do more.
The things you see as weaknesses now will turn out to be your greatest strengths. Just be you, heart and soul, keep turning up for you and others and you’ll be okay.
Speed reading (if I could have a cheeky two skill combo, l’d go for speed reading and photographic memory).
Ron Gutman: The hidden power of smiling. TED talk.
I watched this talk at a very challenging time in my life when I was willing to try anything and everything that could possibly improve my wellbeing. It is an elegantly simple concept and a life hack that has served me well
Jo Szczepanska
Manager of Innovation and Service Development
Jo is really excited about this role’s potential to support community members and health services to partner in new ways, and she’s particularly keen on building networks of support and next-practice.
100% lived experience, but it took me a long time and quite some unlearning to acknowledge that. I’m inspired most when I get to hold space for people with deep diversity to innovate.
Any true co-design process has both made me very uncomfortable and changed my approach to partnering on a molecular level. Most recently, I’ve been incorporating rest and collective care practices in my work, because it’s something communities are rarely gifted.
My garden. I do have a few levels of balcony gardens and have been doing my very best to cultivate expensive crops. Bartering wine, macadamias, wasabi, and vanilla is my retirement plan (also my doomsday prepping plan).
Something I’ve noticed in myself lately, especially as I join this brilliant team, is my ability to be “ready-enough”. I know that I can be adaptable, but I think it’s been great to feel welcome as we figure my role out.
Stay strange.
Don’t rush.
The ability to rest. My new angle to motivate me is that rest is an act of rebellion.
Read: Network Weaver newsletter
Watch: Playlist on Healing, Justice and Design
Listen: Longtime Academy activist and storyteller Ella Saltmarshe will take you on a journey to discover how to become a better ancestor.
Katherine Burnard
Consultant, Learning & Engagement
Katherine’s role is dynamic. One day she is delivering training on consumer and community engagement, and the next day, she’s planning a co-design workshop. No matter the project, building relationships is key to Katherine’s work. Whether that be with lived experience advocates, researchers, grassroots groups, or value-aligned people doing great work in the community – it’s all about collaboration.
I started off my career as an Occupational Therapist working in mental health services. There was a lot about the work which I loved- working so closely with people, learning about their motivations supporting people to work on the things that mattered to them. But it was hard to ignore how broken the mental health system was. I felt like I was part of a system that was failing people, so I turned my attention to trying to improve it. For me this looked like championing and enabling lived experience leadership.
In my late 20s, while living in London, I studied social innovation and co-founded a social enterprise focused on creating belonging and inclusion in the workplace. We collaborated with young people often excluded from meaningful work due to factors like their age, their race, their religion or class. This period was transformative for me, as I deeply reflected on and grappled with the forces of power and privilege. Recognising how these dynamics play out in my interactions, as well as in consumer and community engagement practices and the health system at large, has fundamentally shaped my approach to work.
Knitting is a skill l’ve learnt in the last year. I love having a project to work on and creating something tangible.
Making time to get out of the city and into nature is so vital. During summer my partner and I will take a picnic and find swimming spots along the creek. There are also so many beautiful walking trails out of Melbourne we love to explore.
For a bit of fun, I love going to boot scooting classes. This is a space that celebrates queer joy, it’s inclusive and a bit silly.
Reducing the number of tabs I have opened on my web browser has a direct correlation with reducing my stress levels!
One of your biggest strengths is questioning the way things are done and not settling for the status quo. While school might not always encourage that in you, don’t let it dull your curiosity. Creating positive change in the world means having the courage to challenge the way things have always been done.
I wish I could speak other languages.
Left Write Hook – This is an incredible documentary that follows a group of adult survivors of child sexual abuse and trauma. The group embarks on a lived experience-led program that incorporates boxing and writing to support connection and healing. I recently heard a panel discussion with people involved in the film and it is now available on Netflix!
Jess Franks
Consultant, Co-design & Engagement
I’m the Co-Design & Engagement Consultant at the Health Consumer Centre, and I’m in the unique position of working across both Deakin’s HCC and WVPHN. My role sits at the intersection of creativity, systems thinking, and humanity, helping researchers and health teams bring best-practice co-design to life so that consumer and community voices genuinely shape what we do, rather than sit on the edges.
What I enjoy most is the human side of this work. I get to collaborate with lived and living experience experts, researchers, and clinicians in a way that feels deeply real and relational. There’s something incredibly energising about watching people shift from “I’m not sure how to do this” to “I can see how this changes everything.” I love the moment where confidence clicks, where someone feels safe to share, or where a researcher realises that good engagement isn’t a tick-box — it’s culture-changing, grounding, and often surprisingly creative.
Being able to create spaces where people feel heard, valued, and hopeful is honestly the best part. It reminds me daily that co-design isn’t just a methodology; it’s an act of connection and care, and that’s what makes this work feel meaningful every single day.
I’ve always been driven by a belief that people—especially those with lived and living experience—should shape the systems that shape their lives. Over the years, I’ve seen how health systems can unintentionally make things harder for people, and how co-design, compassion, and good engagement can completely shift that. Working in health transformation allows me to support change that is practical, human, and genuinely values-driven.
My work across WVPHNs, partnerships, co-design projects, lived experience networks, and community engagement has shown me that people rarely get asked how the system feels to them, and when they’re asked safely and respectfully, the insights are extraordinary. I’m deeply influenced by every conversation where someone shares something vulnerable, brave, or personally significant, that can be transformational to our health eco-system. It reinforces for me that our job is to create conditions where voice, diversity, and lived or living wisdom is welcomed and sought after, not simply extracted.
Life is pretty full right now, between my dual role, my consulting work, and a PhD, my days are packed to the brim. But in the moments between all of that, I come alive through movement, creativity, and anything that feels like a mini-adventure.
I love painting (when I actually get the chance!), catching live bands and concerts, because music is the one creative art that can heal you instantly, and saying yes to spontaneous plans with friends. Bike riding, long walks, the gym, sunshine, weekend adventures… if it gets me moving or laughing, I’m in.
At heart, I’m an adventurer and a big “yes” person, I won’t say no to fun, sun, or anything that feels like it might lead to a good story later. I’m a creative soul navigating a very busy season, so whenever space opens up, you’ll find me soaking up every joyful moment I can.
I’ve learned that while I can take on a lot, I don’t need to wear “over-functioning” as a badge of honour. I’m calmer, happier, and more creative when I’m collaborating, sharing ideas, and building things with others. Purpose fuels me, but people sustain me, and that’s been an important realisation.
Dear younger me: the world won’t always measure the kind of intelligence you carry, the emotional insight, the kindness, the ability to make people feel understood. But that doesn’t mean it’s not extraordinary. Keep your childlike warmth, your openness, your imagination. One day you’ll realise that these were never flaws; they were the foundation for everything that makes you good at what you do.
If I could learn a new skill overnight, I’d love to wake up with a stunning singing voice, the kind that gives people goosebumps. Music is such an emotional outlet, and the ability to express myself through singing would feel incredible. And if not singing, I’d choose to become fluent in multiple languages overnight. There’s something magical about connecting with people in their own language, and it would make travel and global collaboration feel like pure joy.
Podcast recommendation: The Diary of a CEO, there are some incredible episodes on purpose, emotional intelligence, relationships, and personal growth.
Book recommendation: The Art of Gathering by Priya Parker, brilliant for anyone designing meetings, workshops, or community-engagement spaces.
Pia Sappl
Lived Experience Research Fellow
Pia describes her role with the centre as her dream job! She was thrilled to join the team in October 2024, and she is currently working part time (2 days per week) which allows her to look after her health. There are so many things that Pia loves about her role; her wonderful colleagues, the interesting and meaningful work, and being able to use her professional skills in research in combination with her lived experience knowledge.
I didn’t set out to work in health transformation. I started my career as a lab-based research scientist, but life had other plans. It was a series of distressing health experiences about ten years ago, when I was a stay-at-home mum of twins, that pushed me to become a consumer advisor. As someone living with chronic conditions, I need to regularly navigate the health system to get the care I need, so I can stay well and be there for my kids. Over time, that drive to get the care I needed evolved into a passion for improving the system for others as well. Now I’m inspired by all the people I meet who are part of the health consumer movement: staff and consumers who can imagine a fairer or better functioning health system and are working together to make that a reality.
In my role, and in this work, I’m always learning. My lived experiences of chronic illness, mental health and disability combined with my experiences of being a carer for family members with disabilities has meant l’ve had to question a lot of assumptions I had about people and how the world works. I try to bring that open minded view when I work with health consumers and community members. As humans, it’s easy to judge and make assumptions so I try to notice when I’m doing that and challenge myself to be open and listen deeply to hear what is actually being said.
Dancing! A few years ago, I took a leap and joined my first tango class as a personal growth challenge—| wasn’t a dancer (or so | thought), and tango felt way outside my comfort zone. But I ended up falling in love with it, and l’ve been hooked ever since. Since then, l’ve explored other styles of dancing, like 5Rhythms, contact improvisation, and belly dancing and each one has brought something unique. I love the way dancing helps me be present in my body, find connection, and be creative. It’s become my joy, my release, and honestly… my medicine and therapy.
That I am a fridge and pantry hoarder. A friend recently helped me organise my pantry and fridge and they were shocked to discover I had items that had expired several years ago. I was shocked that they were shocked. I mean, what’s wrong with keeping dried or pickled food beyond its use by date?!! It’s still good!
Don’t worry so much. You are adaptable, you can solve problems, it’s going to be ok. (I’d also give this advice to my uni-student self, my 30-year-old self, and my 40-year-old self and will probably be giving it my 70-year-old self too!)
Sewing! Most of my wardrobe is from op-shops, and l often find gems that would be perfect with just a tweak or two. I’ve managed a few DIY fixes that I’m pretty proud of, but l’ve never properly learned to sew-so l’m kind of winging it. A few years ago, I picked up a vintage sewing machine at an op-shop (it proudly says “Made in West Germany“—so I know it’s old!). Some functions no longer work and there’s no manual, so there’s a lot of guesswork involved. I’d love to be able to confidently tailor or totally transform pieces, so l don’t have a growing pile of partially altered clothes!
If you’re looking for a movie to watch, it’s worth checking out Mickey 17. I saw it recently and really enjoyed it, which was a surprise as l’ve had a string of underwhelming movie experiences this year. It’s a science fiction black comedy directed by Bong Joon Ho. I was feeling very clever when I made the connection between the creepers and the Ohmu insects from Hayao Miyazaki’s Ghibli movie, ‘Nausicaä of the Valley of the Wind‘ (1984) because l’m generally ignorant when it comes to TV and movie trivia.
Alana Faust
Senior Engagement Officer
Alana facilitates engagement and collaboration between people in the community and organisations, to improve outcomes and shape better and fairer systems. As a big people person, Alana has always been drawn to the collaborative aspects of this role, and since joining Health Voices Victoria, she has also been trusting herself to experiment and lean into the creativity of the process.
The path here wasn’t direct or linear but reflecting on the experiences I have had along the way, it feels like different threads are coming together. I’ve got a background in the youth wellbeing space, supporting organisations to better engage young people in decisions that affect them. When I think about what has inspired me throughout my career, it’s making a meaningful difference and improving things for those who come after us. I’ve also been drawn to working with and learning from passionate people like the HCC team, who authentically partner with communities to shape better outcomes for future generations.
My experience of growing up in a smaller regional community influenced how my approach and practice is centered on trust and true partnerships. I think that’s why I value collaboration, place-based practice, and community led initiatives, because they just make sense to me. The knowledge, power, and trust that communities share needs be valued and respected if we’re going to improve systems and tackle the biggest challenges facing us today.
Nothing is more rejuvenating for me than a saltwater dip and feeling small amongst tall trees. I have several friends who have also recently moved to Melbourne, so there’s lots of exploring and discovery in my life. Lately, I’ve been on a mission to source Melbourne’s best crumpet and then when I can, heading home to hear my nephews’ latest words and adventures. Being an aunty is the best.
I’ve gotten better at trying new things and being bad at it to begin with. I learnt to ride a bike as a kid, but cycling as a form of transport is only something I have taken up since moving to Melbourne (if you know anything about the hills of the NSW South Coast you’ll know why). It’s been a process building my confidence, but the learning for me has really been reinforcing the normalising of discomfort; that I won’t know everything or be the best at it, but if I persist with the discomfort, it eventually becomes comfortable.
I’d probably tell her to ask for help when she needs it, and it doesn’t need to be perfect the first go. So much revolves around the future when you’re a teenager – thinking, planning, or dreaming of what you want to be when you grow up and all the new experiences that are ahead. Because of that, I’d also want to share a quote that reminds me of that time. It speaks to being present in the moment and practicing gratitude: “don’t overlook the beauty of the small things, because one day, you’ll look back and realise they were the big things”.
I’ve been obsessing over learning how to mosaic. There’s something in the transformation metaphor of broken tiles being placed together imperfectly to create something beautiful that’s really appealing to me.
I have two nerdy obsessions: news and bridges. Don’t ask. I’ve been enjoying the podcast “We used to be journos” by Jan Fran and Antoinette Lattouff. And for the bridges, there’s an absolute trailblazer of a woman named Kathleen Butler who had a remarkable impact on the project to build the Sydney Harbour Bridge. I stumbled across this story randomly and was shocked she wasn’t more well known. There’s a two-part podcast about her if you search Mother of the Harbour Bridge.
Abdurrehman Nadeem
Senior Engagement Officer
Abdurrehman loves the multifaceted nature of his work. Not only does he have the privilege of working together with people with lived experience, but he also has the opportunity to contribute to resource development and training initiatives that support meaningful engagement between health organisations, researchers, and the communities they are looking to engage with.
Outside of work, I like to spend time with my family. I also love quiet time, meditation, and
prayer. I enjoy exercising and exploring new places to eat-out 🙂
Never be afraid to initiate conversations. Meet new people and listen (it is a great skill to have, and you learn so much).
It would be amazing if I could learn a new language overnight – it just opens you to a whole new world and culture. I am multilingual and can speak English, Urdu, Punjabi, Turkish, and intermediary level Arabic. I would love to improve my Arabic skills and learn Mandarin.
I would highly recommend a book that I have recently started reading – Muhammad (SAW): 11 Leadership Qualities that Changed the World. The book provides profound insights on Leadership. This guide offers a powerful blend of timeless prophetic wisdom, and modern leadership principles. It is an essential read for anyone seeking to lead with integrity, compassion, and purpose in today’s complex world.
Anny Biagioni
Administration Officer
Anny’s favourite thing about her role is that it’s so eclectic; no two days are the same and she’s always getting opportunities to experience bits and pieces of the many projects that the wider team work on. But perhaps most of all, Anny loves having the opportunity to build bonds of trust with community members and stakeholders, even via communication over the smaller or often-forgotten fiddly admin tasks.
My Mum. She is a nurse and growing up, I remember being in a myriad of healthcare settings with her, some of which felt warm and comfortable, and others felt quite abrasive. Watching my Mum exercise her natural skills for connection and care – and seeing just how valuable they were to people who were navigating a challenging system in a trying time – really inspired me to use my similar skills in the same way.
My education background has coalesced in a magical way to influence my work with consumers and community members. I am a counsellor by trade, with a background in psychology and gender studies, which contributes to the person-centered, intersectional lens that I bring to work with the Centre. But I am also a theatre major with a long history in performing arts. My experiences in the arts industry cemented my deep value for human connection, in all its wonderful forms. If I can forge a safe, genuine, and reciprocal connection with someone through my work at the desk each day, then I’ve had a good day!
Being crafty arty farty – playing guitar, sewing, knitting, designing, singing, theatre- making, colouring, collaging, writing and everything in between. If it’s crafty, it’s probably going to nourish me.
Oh, and the beach. The Scorpio sign / WA child in me is deeply connected to the healing power of the ocean.
I’m learning to be a bit more patient, accepting, and loving when it comes to the way my brain and body work. It’s also so awesome to notice that learning these things for myself is increasing my capacity to hold these things for others – double win!
Listen to your gut and don’t be afraid of what it has to say. It’s got you.
My whole life l’ve wanted to wake up and realise I’m an amazing hip-hop dancer. But alas, I still dance like Mr. Bean.
If you haven’t seen it yet, watch Everything Everywhere All at Once. It’s one of the greatest movies I’ve ever seen, and it always makes my heart flip in all those juicy ways.
Ali Peipers
Project Consultant
Ali has worked as a Project Lead on several Health Voices Victoria projects and enjoys being across lots of different elements of the work that the Centre undertakes. She also enjoys that the Project Consultant role gives her the opportunity to work directly with consumers and community members (which is so insightful), as well as project partners.
I’ve worked in health for many years, initially in the prevention and early detection space, but more recently on a variety of transformation projects. We all know our health system is far from perfect, but it’s heartening to know that changes are always being made. The system improvements the consumers we work with can influence will directly impact the lives and experiences of many people to come.
I’ve been struck by people’s honesty and compassion. Many consumers and community members have had bad experiences with our health system, but they approach this work with positivity and creative determination. They have helped me to more deeply appreciate the value of consumer and community engagement and to see it as a necessary part of system transformation.
I love spending time with animals, whether it be our dog, watching birds, raising lambs or volunteering at an elephant rescue park in Thailand.
And at the risk of sounding daggy, I also love yarn – knitting, crochet, spinning. There’s always something on my needles!
Worry less about what other people think and spend more time exploring what you really want.
To speak another language. I wasn’t given the opportunity to even try at high school and my one effort since was a kick to my confidence.
Hard to stop at one but… read A Fine Balance by Rohinton Mistry. It’s a beautifully written, incredible tale of life on the streets in India. This book will stay with me forever.
Sonia Schink
Social Work Placement Student
Sonia is a Master of Social Work student at Deakin University, completing her placement with Health Voices Victoria. She’s really enjoying working alongside the team and learning from their experiences, and she’s looking forward to contributing in a meaningful way during her placement.
My inspiration to work in health transformation is grounded in my lived experience as a carer. Supporting a child with Type 1 Diabetes and another who is autistic has given me meaningful insight into both the strengths and the challenges faced by health consumers and their families as they navigate complex systems.
My personal experiences have also shaped my professional approach, reinforcing the importance of listening to lived expertise and recognising the unique needs of each individual. They’ve guided my commitment to advocating for inclusive care models and working toward systems that are flexible, compassionate, and genuinely responsive to the people they serve.
Outside of work, I’m nourished by spending time with my family and our pet dogs, Lenny and Frankie. Our dogs bring so much laughter into our lives, especially Frankie, our cheeky sausage dog with loads of attitude! I also love travelling with my family, exploring new places together.
I’ve realised how much I value quiet moments. Whether it’s a walk with the dogs, a cup of coffee in the sun, or reading at night, these small moments of calm really help me recharge.
You don’t have to have it all figured out right now. Life isn’t a straight line, and it’s okay to take time to find your path.
If I could learn one new skill overnight, it would be Auslan.
I highly recommend the Yellow Ladybugs book ‘Supporting Autistic Girls and Gender Diverse Youth‘, written and illustrated by autistic women and gender diverse individuals. It offers a powerful inside perspective, sharing personal stories, reflections, and advice.
Language is a powerful tool. No single set of definitions can describe how every person experiences their health and wellbeing, or how they define themselves. We acknowledge the many terms that are used to describe people and the roles that they play, and that language and preferences continue to evolve over time in the health consumer movement. After deep thinking and discussion with people across the health sector and beyond, we have chosen words that feel ‘right-enough’ to describe our work at this time.
Here’s how we define these terms:
Lived experience – People with a personal experience of a health condition or conditions including carers, supporters, family members, chosen family and kinship groups.
When we say lived experience, we mean it to encompass living experience too – recognising that some people continue to live with their experience daily. We value the deep and rich expertise that comes from lived experience.
Communities – Groups of people who share common characteristics, experiences, or interests.
These may be shaped by factors such as geography, culture, race, ethnicity, age, faith, gender, abilities or sexuality. A community is not limited to a physical location; it can also exist online. Individuals may belong to multiple communities, and these connections can evolve over time.
Engagement – An umbrella term reflecting a range of ways in which people share their views and expertise to inform, create and lead change. This may be through different methods and at different levels e.g. consultation, participation, collaboration, partnership and leadership.
Members of communities, including people with lived experience, are our central focus as we enable and support their engagement within health and related sectors.
We work with people who bring lived expertise – as leaders, change makers, and community members – united by a shared goal to improve their own and others’ experiences of health and wellbeing.
Partners we naturally align with include organisations in health and related sectors, advocacy and consumer organisations, community groups and condition- and population-specific organisations and groups.
We work with people in formal consumer roles, volunteers, leaders, policy makers, clinicians and researchers.
Improving health and wellbeing requires a wide lens. We see health and wellbeing as more than the absence of illness. It includes living well, free from stigma and discrimination, and addressing social, cultural, environmental, commercial and economic determinants of health – the wider forces and systems that shape our lives. We engage from prevention to early intervention, across treatment, care and support, and across the life course.
The best way to stay in touch with us and find out about collaboration opportunities is by signing up to our monthly newsletter, The Chorus.
The first step is to email us at healthvoicesvic@deakin.edu.au with a short summary of the support you’re looking for. Someone from our team will then get in touch to chat about your needs and how we can best work with you.
Each month we share our Health Voices Chorus newsletter – with our subscribers. In it we share:
- Updates from the team
- Engagement opportunities for consumers and communities
- Resources and events
If you would like to receive this newsletter please subscribe using the form below.
Before its closure, Health Issues Centre developed many resources to support healthcare organisations and consumers to partner more effectively. These resources were previously available on the Health Issues Centre website, which has now shut down. We wanted to ensure that these resources were not lost to the sector, so we have created this resource library.
Evaluation Framework 2022
This framework provides a consistent approach with tools and resources that can be applied or adapted to guide internal evaluation and enable continuous quality improvement of a health service’s Community Advisory Committee.
Evaluation Framework 2022 - PDF, 866 KBEvaluation Framework 2023
This framework has the same purpose as the 2022 version, inclusive of some updates (reflected on page 3). Updates include additional requirements for co-production with CAC members, further information about project management, program evaluation, the Model for Improvement, measuring and reporting CAC impact, and improved resources.
Evaluation Framework 2023 - DOC, 624 KBEvaluation Checklist
This checklist helps health services take a planned approach to designing, delivering, and evaluating Community Advisory Committees.
Evaluation Checklist - DOC, 35 KBEvaluation Plan Template
A ‘living document’ that evolves as the evaluation of the health service Community Advisory Committee progresses. This template can be used to provide clarity on what the evaluation is meant to achieve, detail who is involved, and define key deliverables and timelines.
Evaluation Plan Template - DOC, 87 KBEvaluation Questions Bank
A tailorable template and a repository for questions that may guide the Community Advisory Committee evaluation process.
Evaluation Questions Bank - DOC, 36 KBEvaluation Report and Action Plan Template
This template can be populated with information that summarises the findings and recommendations for improvement from the evaluation of a Community Advisory Committee.
Evaluation Report and Action Plan Template - DOC, 35 KBStakeholder Engagement Plan Template
This template guides plans to communicate with stakeholders to attain their support for the Community Advisory Committee. It specifies the frequency and type of communications and activities, to build and maintain engagement with the evaluation at all levels.
Stakeholder Engagement Plan Template - DOC, 47 KBTraining slides: Introduction to Program Logic (CAC Evaluation)
An introduction to the purpose, background, theory, outcomes, and implementation of a Community Advisory Committee evaluation process.
Training slides - PDF, 976 KBProgram Logic Template
This template can be used to discuss and document the intention of the Community Advisory Committee evaluation at each stage of the process. It is designed to be used in a workshop with all key representatives and stakeholders involved.
Program Logic Template - DOC, 237 KBMiddlemore Consumer Engagement Questionnaire (MCE-Q)
This questionnaire is designed to help understand the unique perspectives of health consumers who represent their communities in health governance groups.
Questionnaire - PDF, 149 KBConsumer Model: Partnering with Healthcare Organisations
“This model highlights the opportunities that exist for consumers to contribute to transformational change of the health system, no matter their level of experience. It outlines how consumers and health organisations can
work in an effective partnership that is mutually beneficial”.
Aligning the Partnering with Healthcare framework with the Rainbow Tick
This fact sheet advises health services how to follow Rainbow Tick guidance when developing plans to fulfil the Partnering in Healthcare framework.
Aligning the Partnering with Healthcare framework with the Rainbow Tick - PDF, 995 KBGuide for Inclusive Community Consultations
This guide is designed for health services staff and outlines the main considerations when undertaking consumer consultations. It covers various methods, planning, risk management, and step-by-step guidance on all stages of the consumer consultation process. This guide is a companion to ‘Guide for Engaging Diverse Consumers in Organisational and Governance Structures 2022’.
Inclusive Community Consultations - PDF, 2 MBGuide to engaging diverse consumers in organisational and governance structures
This step-by-step guide is designed to be used when consumers are invited to be part of internal structured processes and systems as partners in decision-making in healthcare partnerships. It includes descriptions of the processes, planning stages and methods for engaging with consumers from diverse backgrounds on service governance, design, development, implementation, and evaluation. This guide is a companion to ‘Guide for Inclusive Community Consultations 2022’.
Engaging diverse consumers in organisational and governance structures - PDF, 1 MBConsumer Model: Partnering with Healthcare Organisations
This model highlights the opportunities that exist for consumers to contribute to transformational change of the health system, no matter their level of experience. It outlines how consumers and health organisations can work in an effective partnership that is mutually beneficial.
Consumer Model - PDF, 920 KBSix steps to successfully onboarding Consumer Advisors
This guide supports health organisations to create processes that ensure consumer advisors are provided with the support, information, and resources that they need to be effective in their advisory roles over the first 6-12 months.
Six steps to successfully onboarding Consumer Advisors - PDF, 2 MBSix steps to becoming a consumer advisor
A visual resource to help guide people navigating the early stages of becoming a consumer advisor.
Six steps to becoming a consumer advisor - PNG, 169 KBConsumer Advisor Skills Checklist
This checklist is a way for consumers to reflect on what advisory skills they have developed over time, and what areas they would like to further develop.
Consumer Advisor Skills Checklist - PDF, 309 KBConsumer Advisor Skills Checklist (Editable)
A word version of the Checklist that can be completed electronically.
Consumer Advisor Skills Checklist - Editable - DOC, 112 KBGuide for consumers to self-assess the quality of their engagement
This guide supports consumer representatives or advisors to self-assess the quality of their engagement in healthcare organisations.
Guide for consumers to self-assess the quality of their engagement - PDF, 986 KBConsumer Engagement Train the Trainer Manual
This manual contains information that will help to train others in consumer engagement. It explores the characteristics of a good trainer, the principles and barries in adult learning and how to address them, developing learning outcomes and training materials, implementing a training program, monitoring and assessing participant learnings, and self-assessing trainer performance. This manual is a companion to ‘Consumer Engagement Train the Trainer Toolkit’.
Consumer Engagement Train the Trainer Manual - PDF, 2 MBConsumer Engagement Train the Trainer Toolkit
This toolkit supports the trainer in planning, implemetating, and evaluating consumer engagement. A series of consumer engagement tools and templates and consumer engagement support resources are available in this toolkit to help trainers and trainees to implement best practice consumer engagement in organisational committees and governance. This toolkit is a companion to ‘Consumer Engagement Train the Trainer Manual’.
Consumer Engagement Train the Trainer Toolkit - PDF, 2 MBGet in touch
03 9246 8764
healthvoicesvic@deakin.edu.au
Deakin University,
221 Burwood Highway,
Burwood VIC, 3125
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About
Vision
A future where the expertise of communities and of lived experience is valued and embedded into every effort to improve health and wellbeing.
Purpose
Health Voices Victoria’s purpose is to enable and improve the engagement of communities and people with lived experience within health and related sectors.
We advocate for high-quality engagement as standard practice, because transformation happens when the people the health system is designed to support have seats at the table as equal partners.
We contribute to building the trust, evidence, systems, skills and confidence needed to ensure this work leads to meaningful influence and lasting impact.
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What we do
We work with a wide range of organisations and people and across multiple sectors related to health and wellbeing. This includes work in policy, service design, service delivery, training, evaluation and research.
Recruitment
We communicate regularly with our network of more than 2,000 highly engaged and diverse community members. We tailor recruitment campaigns to help you connect with the people you need to partner with in your project, organisation or initiative. We handle the selection process, ensuring a mix of perspectives and experiences, and we support clear and thoughtful communication before and after each opportunity.
Training & development
We create practical, inclusive and enjoyable learning experiences for anyone looking to build their skills and confidence in the art and science of community and lived experience engagement. Sessions range from short workshops to immersive programs and can be delivered online or in person. Topics include:
- Consumer and community involvement in research
- Trauma-informed engagement and facilitation
- Creating psychologically safe-enough environments
- Effective engagement on committees
- Co-design essentials
- Hosting community-led Kitchen Table Conversations
Lived experience and community engagement
We design and deliver engagement that is respectful, trauma-informed and grounded in genuine relationship-building. This includes advisory group formation and management, leading activities such as workshops, focus groups, interviews, surveys, and community-based approaches. We thoughtfully apply a mix of different levels of engagement depending on the project, the context, and the available time and resources. This ranges from consultation, through to co-design and consumer led initiatives. We will always call it what it is.
We often work alongside advocacy groups and grassroots partners to reach people who are seldom heard, and to tailor engagement so it genuinely suits the needs of different communities. Our work ranges in scale and duration from one-off engagements through to multi-year initiatives.
Co-design
We bring people together to build a shared understanding of what is needed and to shape solutions collectively from the very start of an initiative. We tailor each co-design process, drawing on different models to create a fit for purpose methodology that we implement and evolve as we go. Our approach always supports shared decision-making, carefully wrestles with power dynamics and creates space for different forms of expertise to interweave in meaningful ways. We evaluate and refine our approach as we go. Co-design takes time and resources — these projects unfold over many months, and often over several years.
Research partners
We help researchers involve communities and people with lived experience throughout the research cycle, from defining research questions that genuinely reflect community needs pre-grant, through to translating findings for broader impact. We can support researchers to create a practical consumer and community involvement plan for a research grant and can partner as part of the research team to enable and support this work if successful.
Engagement framework development and implementation support
We work with organisations to create or update Engagement Frameworks to guide their efforts to evolve and strengthen the engagement of people with lived experience and communities at all levels, through to governance. These are designed to be practical, values-driven and built through collaboration. Through workshops and iterative review, we identify strengths and gaps, articulate shared principles and develop a clear path toward meaningful engagement. We also provide support to put the Framework into practice, helping teams implement their Engagement Framework into day-to-day processes, behaviours and ways of working.
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Our Story
Whilst Health Voices Victoria is newly established, it is connected to a long history. We have evolved from the Health Issues Centre, which was Victoria’s peak organisation for consumer engagement in health for almost 40 years.
The Health Issues Centre story started in the early 1980s at a time when the prevailing culture in health was to do it for us, not with us. It was formally established as the peak health consumer agency in 1985. This was at a time when there were few, if any, seats at decision-making tables for community members or people with lived experience.
The organisation operated for 39 years as an avid champion for health consumers across the state but ceased service delivery on in March 2024 due to sustained financial challenges.
But in May 2024, a new chapter in this story commenced. Deakin University’s Institute for Health Transformation announced that it would be the custodian of the legacy created by the Health Issues Centre.
The establishment of Health Voices Victoria within Deakin marks a new era for community and lived experience engagement in Victoria.
Our values
We are curious
We respectfully seek and embrace diverse perspectives. With open minds and hearts, we listen deeply and value the inherent wisdom of each person with whom we work.
We are authentic
We individually and collectively reflect on our actions, and continuously learn and grow through our work. We recognise our privilege and potential biases, and encourage others to do so too.
We act with integrity
We are transparent and accountable for our actions.
We are inclusive and equitable
We recognise that some voices are hardly heard and work to engage in ways that are meaningful, safe and promote trust and healing. We place additional efforts into communities that face the biggest barriers to health and wellbeing due to being marginalised and discriminated against by systems and society.
We partner
We believe in the power of collective effort. Committed to collaboration, everything we do comes back to building trusted relationships. Through partnerships, alliances and networks, we share knowledge and resources and find solutions together. We avoid duplication and celebrate our own and others’ achievements. Instead of competitors, we see potential allies.
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Meet the team
Alison Coughlan
Senior Manager
Consumer and community engagement has been a great passion for Alison for almost thirty years now. She feels that it is such a privilege to be the Manager of Health Voices Victoria, as she gets to work every day that she cares about so deeply with many amazing human beings.
What inspired you to work in health transformation?I have always wanted to make a difference through my work. I started my career in immunology research, working in a lab, and very early on I can remember it feeling like such a long distance between the work | was doing and meaningful change for people. That and a significant health issue in my early 20s made me reassess where I was at. I chose to study public health and the thread of meaningful work and transformative change has been a feature of the further steps I have taken in my career since then.
What experiences have been influential to the way you approach work with health consumers and community members?In 1997, early in my career in public health, I joined the team at BreastScreen Victoria where I worked for 7 years. This was when I first learnt on the ground about consumer and community engagement. It was embedded into all elements of our work; our governance and the expertise of consumers was valued equally with that of clinicians and leaders in our services. It was also a time when the breast cancer advocacy movement was gaining momentum, and I had the privilege of working alongside Lyn Swinburne as the Breast Cancer Network Australia took form. I was inspired and emboldened by the incredible women that I was working with at the time, and we started pushing the boundaries of consumer and community engagement practice all those years ago. I’ve been hooked ever since.
What nourishes you or brings you joy outside of work hours?Family is so important to me and it’s just as well as I have a large one. My partner Nick and I have a blended family with five daughters and a new addition this year, our granddaughter Daisy. Add in a few partners, extended family and friends and you’ll find me in my happy place, cooking up a storm and feeding all the people! Nourishing others nourishes me!
What is something you’ve learned about yourself recently?That teaching lights me up. I recently had the opportunity to participate as a guest speaker in two Uni lectures and I loved it and would like to do more.
What is one piece of advice you’d give to your high-school self?The things you see as weaknesses now will turn out to be your greatest strengths. Just be you, heart and soul, keep turning up for you and others and you’ll be okay.
If you could learn one new skill overnight, what would it be?Speed reading (if I could have a cheeky two skill combo, l’d go for speed reading and photographic memory).
Give us a recommendation for something to read, watch, or listen to!Ron Gutman: The hidden power of smiling. TED talk.
I watched this talk at a very challenging time in my life when I was willing to try anything and everything that could possibly improve my wellbeing. It is an elegantly simple concept and a life hack that has served me well
Jo Szczepanska
Manager of Innovation and Service Development
Jo is really excited about this role’s potential to support community members and health services to partner in new ways, and she’s particularly keen on building networks of support and next-practice.
What inspired you to work in health transformation?100% lived experience, but it took me a long time and quite some unlearning to acknowledge that. I’m inspired most when I get to hold space for people with deep diversity to innovate.
What experiences have been influential to the way you approach work with health consumers and community members?Any true co-design process has both made me very uncomfortable and changed my approach to partnering on a molecular level. Most recently, I’ve been incorporating rest and collective care practices in my work, because it’s something communities are rarely gifted.
What nourishes you or brings you joy outside of work hours?My garden. I do have a few levels of balcony gardens and have been doing my very best to cultivate expensive crops. Bartering wine, macadamias, wasabi, and vanilla is my retirement plan (also my doomsday prepping plan).
What is something you’ve learned about yourself recently?Something I’ve noticed in myself lately, especially as I join this brilliant team, is my ability to be “ready-enough”. I know that I can be adaptable, but I think it’s been great to feel welcome as we figure my role out.
What is one piece of advice you’d give to your high-school self?Stay strange.
Don’t rush.If you could learn one new skill overnight, what would it be?The ability to rest. My new angle to motivate me is that rest is an act of rebellion.
Give us a recommendation for something to read, watch, or listen to!Read: Network Weaver newsletter
Watch: Playlist on Healing, Justice and Design
Listen: Longtime Academy activist and storyteller Ella Saltmarshe will take you on a journey to discover how to become a better ancestor.
Katherine Burnard
Consultant, Learning & Engagement
Katherine’s role is dynamic. One day she is delivering training on consumer and community engagement, and the next day, she’s planning a co-design workshop. No matter the project, building relationships is key to Katherine’s work. Whether that be with lived experience advocates, researchers, grassroots groups, or value-aligned people doing great work in the community – it’s all about collaboration.
What inspired you to work in health transformation?I started off my career as an Occupational Therapist working in mental health services. There was a lot about the work which I loved- working so closely with people, learning about their motivations supporting people to work on the things that mattered to them. But it was hard to ignore how broken the mental health system was. I felt like I was part of a system that was failing people, so I turned my attention to trying to improve it. For me this looked like championing and enabling lived experience leadership.
What experiences have been influential to the way you approach work with health consumers and community members?In my late 20s, while living in London, I studied social innovation and co-founded a social enterprise focused on creating belonging and inclusion in the workplace. We collaborated with young people often excluded from meaningful work due to factors like their age, their race, their religion or class. This period was transformative for me, as I deeply reflected on and grappled with the forces of power and privilege. Recognising how these dynamics play out in my interactions, as well as in consumer and community engagement practices and the health system at large, has fundamentally shaped my approach to work.
What nourishes you or brings you joy outside of work hours?Knitting is a skill l’ve learnt in the last year. I love having a project to work on and creating something tangible.
Making time to get out of the city and into nature is so vital. During summer my partner and I will take a picnic and find swimming spots along the creek. There are also so many beautiful walking trails out of Melbourne we love to explore.
For a bit of fun, I love going to boot scooting classes. This is a space that celebrates queer joy, it’s inclusive and a bit silly.
What is something you’ve learned about yourself recently?Reducing the number of tabs I have opened on my web browser has a direct correlation with reducing my stress levels!
What is one piece of advice you’d give to your high-school self?One of your biggest strengths is questioning the way things are done and not settling for the status quo. While school might not always encourage that in you, don’t let it dull your curiosity. Creating positive change in the world means having the courage to challenge the way things have always been done.
If you could learn one new skill overnight, what would it be?I wish I could speak other languages.
Give us a recommendation for something to read, watch, or listen to!Left Write Hook – This is an incredible documentary that follows a group of adult survivors of child sexual abuse and trauma. The group embarks on a lived experience-led program that incorporates boxing and writing to support connection and healing. I recently heard a panel discussion with people involved in the film and it is now available on Netflix!
Jess Franks
Consultant, Co-design & Engagement
I’m the Co-Design & Engagement Consultant at the Health Consumer Centre, and I’m in the unique position of working across both Deakin’s HCC and WVPHN. My role sits at the intersection of creativity, systems thinking, and humanity, helping researchers and health teams bring best-practice co-design to life so that consumer and community voices genuinely shape what we do, rather than sit on the edges.
What I enjoy most is the human side of this work. I get to collaborate with lived and living experience experts, researchers, and clinicians in a way that feels deeply real and relational. There’s something incredibly energising about watching people shift from “I’m not sure how to do this” to “I can see how this changes everything.” I love the moment where confidence clicks, where someone feels safe to share, or where a researcher realises that good engagement isn’t a tick-box — it’s culture-changing, grounding, and often surprisingly creative.
Being able to create spaces where people feel heard, valued, and hopeful is honestly the best part. It reminds me daily that co-design isn’t just a methodology; it’s an act of connection and care, and that’s what makes this work feel meaningful every single day.
What inspired you to work in health transformation?I’ve always been driven by a belief that people—especially those with lived and living experience—should shape the systems that shape their lives. Over the years, I’ve seen how health systems can unintentionally make things harder for people, and how co-design, compassion, and good engagement can completely shift that. Working in health transformation allows me to support change that is practical, human, and genuinely values-driven.
What experiences have been influential to the way you approach your work with health consumers and community members?My work across WVPHNs, partnerships, co-design projects, lived experience networks, and community engagement has shown me that people rarely get asked how the system feels to them, and when they’re asked safely and respectfully, the insights are extraordinary. I’m deeply influenced by every conversation where someone shares something vulnerable, brave, or personally significant, that can be transformational to our health eco-system. It reinforces for me that our job is to create conditions where voice, diversity, and lived or living wisdom is welcomed and sought after, not simply extracted.
What nourishes you or brings you joy outside of work hours?Life is pretty full right now, between my dual role, my consulting work, and a PhD, my days are packed to the brim. But in the moments between all of that, I come alive through movement, creativity, and anything that feels like a mini-adventure.
I love painting (when I actually get the chance!), catching live bands and concerts, because music is the one creative art that can heal you instantly, and saying yes to spontaneous plans with friends. Bike riding, long walks, the gym, sunshine, weekend adventures… if it gets me moving or laughing, I’m in.
At heart, I’m an adventurer and a big “yes” person, I won’t say no to fun, sun, or anything that feels like it might lead to a good story later. I’m a creative soul navigating a very busy season, so whenever space opens up, you’ll find me soaking up every joyful moment I can.
What is something you’ve learned about yourself recently?I’ve learned that while I can take on a lot, I don’t need to wear “over-functioning” as a badge of honour. I’m calmer, happier, and more creative when I’m collaborating, sharing ideas, and building things with others. Purpose fuels me, but people sustain me, and that’s been an important realisation.
What is one piece of advice you’d give to your high-school self?Dear younger me: the world won’t always measure the kind of intelligence you carry, the emotional insight, the kindness, the ability to make people feel understood. But that doesn’t mean it’s not extraordinary. Keep your childlike warmth, your openness, your imagination. One day you’ll realise that these were never flaws; they were the foundation for everything that makes you good at what you do.
If you could learn one new skill overnight, what would it be?If I could learn a new skill overnight, I’d love to wake up with a stunning singing voice, the kind that gives people goosebumps. Music is such an emotional outlet, and the ability to express myself through singing would feel incredible. And if not singing, I’d choose to become fluent in multiple languages overnight. There’s something magical about connecting with people in their own language, and it would make travel and global collaboration feel like pure joy.
Give us a recommendation for something to read, watch, or listen to!Podcast recommendation: The Diary of a CEO, there are some incredible episodes on purpose, emotional intelligence, relationships, and personal growth.
Book recommendation: The Art of Gathering by Priya Parker, brilliant for anyone designing meetings, workshops, or community-engagement spaces.
Pia Sappl
Lived Experience Research Fellow
Pia describes her role with the centre as her dream job! She was thrilled to join the team in October 2024, and she is currently working part time (2 days per week) which allows her to look after her health. There are so many things that Pia loves about her role; her wonderful colleagues, the interesting and meaningful work, and being able to use her professional skills in research in combination with her lived experience knowledge.
What inspired you to work in health transformation?I didn’t set out to work in health transformation. I started my career as a lab-based research scientist, but life had other plans. It was a series of distressing health experiences about ten years ago, when I was a stay-at-home mum of twins, that pushed me to become a consumer advisor. As someone living with chronic conditions, I need to regularly navigate the health system to get the care I need, so I can stay well and be there for my kids. Over time, that drive to get the care I needed evolved into a passion for improving the system for others as well. Now I’m inspired by all the people I meet who are part of the health consumer movement: staff and consumers who can imagine a fairer or better functioning health system and are working together to make that a reality.
What experiences have been influential to the way you approach work with health consumers and community members?In my role, and in this work, I’m always learning. My lived experiences of chronic illness, mental health and disability combined with my experiences of being a carer for family members with disabilities has meant l’ve had to question a lot of assumptions I had about people and how the world works. I try to bring that open minded view when I work with health consumers and community members. As humans, it’s easy to judge and make assumptions so I try to notice when I’m doing that and challenge myself to be open and listen deeply to hear what is actually being said.
What nourishes you or brings you joy outside of work hours?Dancing! A few years ago, I took a leap and joined my first tango class as a personal growth challenge—| wasn’t a dancer (or so | thought), and tango felt way outside my comfort zone. But I ended up falling in love with it, and l’ve been hooked ever since. Since then, l’ve explored other styles of dancing, like 5Rhythms, contact improvisation, and belly dancing and each one has brought something unique. I love the way dancing helps me be present in my body, find connection, and be creative. It’s become my joy, my release, and honestly… my medicine and therapy.
What is something you’ve learned about yourself recently?That I am a fridge and pantry hoarder. A friend recently helped me organise my pantry and fridge and they were shocked to discover I had items that had expired several years ago. I was shocked that they were shocked. I mean, what’s wrong with keeping dried or pickled food beyond its use by date?!! It’s still good!
What is one piece of advice you’d give to your high-school self?Don’t worry so much. You are adaptable, you can solve problems, it’s going to be ok. (I’d also give this advice to my uni-student self, my 30-year-old self, and my 40-year-old self and will probably be giving it my 70-year-old self too!)
If you could learn one new skill overnight, what would it be?Sewing! Most of my wardrobe is from op-shops, and l often find gems that would be perfect with just a tweak or two. I’ve managed a few DIY fixes that I’m pretty proud of, but l’ve never properly learned to sew-so l’m kind of winging it. A few years ago, I picked up a vintage sewing machine at an op-shop (it proudly says “Made in West Germany“—so I know it’s old!). Some functions no longer work and there’s no manual, so there’s a lot of guesswork involved. I’d love to be able to confidently tailor or totally transform pieces, so l don’t have a growing pile of partially altered clothes!
Give us a recommendation for something to read, watch, or listen to!If you’re looking for a movie to watch, it’s worth checking out Mickey 17. I saw it recently and really enjoyed it, which was a surprise as l’ve had a string of underwhelming movie experiences this year. It’s a science fiction black comedy directed by Bong Joon Ho. I was feeling very clever when I made the connection between the creepers and the Ohmu insects from Hayao Miyazaki’s Ghibli movie, ‘Nausicaä of the Valley of the Wind‘ (1984) because l’m generally ignorant when it comes to TV and movie trivia.
Alana Faust
Senior Engagement Officer
Alana facilitates engagement and collaboration between people in the community and organisations, to improve outcomes and shape better and fairer systems. As a big people person, Alana has always been drawn to the collaborative aspects of this role, and since joining Health Voices Victoria, she has also been trusting herself to experiment and lean into the creativity of the process.
What inspired you to work in health transformation?The path here wasn’t direct or linear but reflecting on the experiences I have had along the way, it feels like different threads are coming together. I’ve got a background in the youth wellbeing space, supporting organisations to better engage young people in decisions that affect them. When I think about what has inspired me throughout my career, it’s making a meaningful difference and improving things for those who come after us. I’ve also been drawn to working with and learning from passionate people like the HCC team, who authentically partner with communities to shape better outcomes for future generations.
What experiences have been influential to the way you approach work with health consumers and community members?My experience of growing up in a smaller regional community influenced how my approach and practice is centered on trust and true partnerships. I think that’s why I value collaboration, place-based practice, and community led initiatives, because they just make sense to me. The knowledge, power, and trust that communities share needs be valued and respected if we’re going to improve systems and tackle the biggest challenges facing us today.
What nourishes you or brings you joy outside of work hours?Nothing is more rejuvenating for me than a saltwater dip and feeling small amongst tall trees. I have several friends who have also recently moved to Melbourne, so there’s lots of exploring and discovery in my life. Lately, I’ve been on a mission to source Melbourne’s best crumpet and then when I can, heading home to hear my nephews’ latest words and adventures. Being an aunty is the best.
What is something you’ve learned about yourself recently?I’ve gotten better at trying new things and being bad at it to begin with. I learnt to ride a bike as a kid, but cycling as a form of transport is only something I have taken up since moving to Melbourne (if you know anything about the hills of the NSW South Coast you’ll know why). It’s been a process building my confidence, but the learning for me has really been reinforcing the normalising of discomfort; that I won’t know everything or be the best at it, but if I persist with the discomfort, it eventually becomes comfortable.
What is one piece of advice you’d give to your high-school self?I’d probably tell her to ask for help when she needs it, and it doesn’t need to be perfect the first go. So much revolves around the future when you’re a teenager – thinking, planning, or dreaming of what you want to be when you grow up and all the new experiences that are ahead. Because of that, I’d also want to share a quote that reminds me of that time. It speaks to being present in the moment and practicing gratitude: “don’t overlook the beauty of the small things, because one day, you’ll look back and realise they were the big things”.
If you could learn one new skill overnight, what would it be?I’ve been obsessing over learning how to mosaic. There’s something in the transformation metaphor of broken tiles being placed together imperfectly to create something beautiful that’s really appealing to me.
Give us a recommendation for something to read, watch, or listen to!I have two nerdy obsessions: news and bridges. Don’t ask. I’ve been enjoying the podcast “We used to be journos” by Jan Fran and Antoinette Lattouff. And for the bridges, there’s an absolute trailblazer of a woman named Kathleen Butler who had a remarkable impact on the project to build the Sydney Harbour Bridge. I stumbled across this story randomly and was shocked she wasn’t more well known. There’s a two-part podcast about her if you search Mother of the Harbour Bridge.
Abdurrehman Nadeem
Senior Engagement Officer
Abdurrehman loves the multifaceted nature of his work. Not only does he have the privilege of working together with people with lived experience, but he also has the opportunity to contribute to resource development and training initiatives that support meaningful engagement between health organisations, researchers, and the communities they are looking to engage with.
What nourishes you or brings you joy outside of work hours?Outside of work, I like to spend time with my family. I also love quiet time, meditation, and
prayer. I enjoy exercising and exploring new places to eat-out 🙂What is one piece of advice you’d give to your high-school self?Never be afraid to initiate conversations. Meet new people and listen (it is a great skill to have, and you learn so much).
If you could learn one new skill overnight, what would it be?It would be amazing if I could learn a new language overnight – it just opens you to a whole new world and culture. I am multilingual and can speak English, Urdu, Punjabi, Turkish, and intermediary level Arabic. I would love to improve my Arabic skills and learn Mandarin.
Give us a recommendation for something to read, watch, or listen to!I would highly recommend a book that I have recently started reading – Muhammad (SAW): 11 Leadership Qualities that Changed the World. The book provides profound insights on Leadership. This guide offers a powerful blend of timeless prophetic wisdom, and modern leadership principles. It is an essential read for anyone seeking to lead with integrity, compassion, and purpose in today’s complex world.
Anny Biagioni
Administration Officer
Anny’s favourite thing about her role is that it’s so eclectic; no two days are the same and she’s always getting opportunities to experience bits and pieces of the many projects that the wider team work on. But perhaps most of all, Anny loves having the opportunity to build bonds of trust with community members and stakeholders, even via communication over the smaller or often-forgotten fiddly admin tasks.
What inspired you to work in health transformation?My Mum. She is a nurse and growing up, I remember being in a myriad of healthcare settings with her, some of which felt warm and comfortable, and others felt quite abrasive. Watching my Mum exercise her natural skills for connection and care – and seeing just how valuable they were to people who were navigating a challenging system in a trying time – really inspired me to use my similar skills in the same way.
What experiences have been influential to the way you approach work with health consumers and community members?My education background has coalesced in a magical way to influence my work with consumers and community members. I am a counsellor by trade, with a background in psychology and gender studies, which contributes to the person-centered, intersectional lens that I bring to work with the Centre. But I am also a theatre major with a long history in performing arts. My experiences in the arts industry cemented my deep value for human connection, in all its wonderful forms. If I can forge a safe, genuine, and reciprocal connection with someone through my work at the desk each day, then I’ve had a good day!
What nourishes you or brings you joy outside of work hours?Being crafty arty farty – playing guitar, sewing, knitting, designing, singing, theatre- making, colouring, collaging, writing and everything in between. If it’s crafty, it’s probably going to nourish me.
Oh, and the beach. The Scorpio sign / WA child in me is deeply connected to the healing power of the ocean.
What is something you’ve learned about yourself recently?I’m learning to be a bit more patient, accepting, and loving when it comes to the way my brain and body work. It’s also so awesome to notice that learning these things for myself is increasing my capacity to hold these things for others – double win!
What is one piece of advice you’d give to your high-school self?Listen to your gut and don’t be afraid of what it has to say. It’s got you.
If you could learn one new skill overnight, what would it be?My whole life l’ve wanted to wake up and realise I’m an amazing hip-hop dancer. But alas, I still dance like Mr. Bean.
Give us a recommendation for something to read, watch, or listen to!If you haven’t seen it yet, watch Everything Everywhere All at Once. It’s one of the greatest movies I’ve ever seen, and it always makes my heart flip in all those juicy ways.
Ali Peipers
Project Consultant
Ali has worked as a Project Lead on several Health Voices Victoria projects and enjoys being across lots of different elements of the work that the Centre undertakes. She also enjoys that the Project Consultant role gives her the opportunity to work directly with consumers and community members (which is so insightful), as well as project partners.
What inspired you to work in health transformation?I’ve worked in health for many years, initially in the prevention and early detection space, but more recently on a variety of transformation projects. We all know our health system is far from perfect, but it’s heartening to know that changes are always being made. The system improvements the consumers we work with can influence will directly impact the lives and experiences of many people to come.
What experiences have been influential to the way you approach work with health consumers and community members?I’ve been struck by people’s honesty and compassion. Many consumers and community members have had bad experiences with our health system, but they approach this work with positivity and creative determination. They have helped me to more deeply appreciate the value of consumer and community engagement and to see it as a necessary part of system transformation.
What nourishes you or brings you joy outside of work hours?I love spending time with animals, whether it be our dog, watching birds, raising lambs or volunteering at an elephant rescue park in Thailand.
And at the risk of sounding daggy, I also love yarn – knitting, crochet, spinning. There’s always something on my needles!
What is one piece of advice you’d give to your high-school self?Worry less about what other people think and spend more time exploring what you really want.
If you could learn one new skill overnight, what would it be?To speak another language. I wasn’t given the opportunity to even try at high school and my one effort since was a kick to my confidence.
Give us a recommendation for something to read, watch, or listen to!Hard to stop at one but… read A Fine Balance by Rohinton Mistry. It’s a beautifully written, incredible tale of life on the streets in India. This book will stay with me forever.
Sonia Schink
Social Work Placement Student
Sonia is a Master of Social Work student at Deakin University, completing her placement with Health Voices Victoria. She’s really enjoying working alongside the team and learning from their experiences, and she’s looking forward to contributing in a meaningful way during her placement.
What inspired you to work in health transformation?My inspiration to work in health transformation is grounded in my lived experience as a carer. Supporting a child with Type 1 Diabetes and another who is autistic has given me meaningful insight into both the strengths and the challenges faced by health consumers and their families as they navigate complex systems.
What experiences have been influential to the way you approach work with health consumers and community members?My personal experiences have also shaped my professional approach, reinforcing the importance of listening to lived expertise and recognising the unique needs of each individual. They’ve guided my commitment to advocating for inclusive care models and working toward systems that are flexible, compassionate, and genuinely responsive to the people they serve.
What nourishes you or brings you joy outside of work hours?Outside of work, I’m nourished by spending time with my family and our pet dogs, Lenny and Frankie. Our dogs bring so much laughter into our lives, especially Frankie, our cheeky sausage dog with loads of attitude! I also love travelling with my family, exploring new places together.
What is something you’ve learned about yourself recently?I’ve realised how much I value quiet moments. Whether it’s a walk with the dogs, a cup of coffee in the sun, or reading at night, these small moments of calm really help me recharge.
What is one piece of advice you’d give to your high-school self?You don’t have to have it all figured out right now. Life isn’t a straight line, and it’s okay to take time to find your path.
If you could learn one new skill overnight, what would it be?If I could learn one new skill overnight, it would be Auslan.
Give us a recommendation for something to read, watch, or listen to!I highly recommend the Yellow Ladybugs book ‘Supporting Autistic Girls and Gender Diverse Youth‘, written and illustrated by autistic women and gender diverse individuals. It offers a powerful inside perspective, sharing personal stories, reflections, and advice.
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FAQs
What is community and lived experience engagement?Language is a powerful tool. No single set of definitions can describe how every person experiences their health and wellbeing, or how they define themselves. We acknowledge the many terms that are used to describe people and the roles that they play, and that language and preferences continue to evolve over time in the health consumer movement. After deep thinking and discussion with people across the health sector and beyond, we have chosen words that feel ‘right-enough’ to describe our work at this time.
Here’s how we define these terms:
Lived experience – People with a personal experience of a health condition or conditions including carers, supporters, family members, chosen family and kinship groups.
When we say lived experience, we mean it to encompass living experience too – recognising that some people continue to live with their experience daily. We value the deep and rich expertise that comes from lived experience.
Communities – Groups of people who share common characteristics, experiences, or interests.
These may be shaped by factors such as geography, culture, race, ethnicity, age, faith, gender, abilities or sexuality. A community is not limited to a physical location; it can also exist online. Individuals may belong to multiple communities, and these connections can evolve over time.
Engagement – An umbrella term reflecting a range of ways in which people share their views and expertise to inform, create and lead change. This may be through different methods and at different levels e.g. consultation, participation, collaboration, partnership and leadership.
Who do you work with?Members of communities, including people with lived experience, are our central focus as we enable and support their engagement within health and related sectors.
We work with people who bring lived expertise – as leaders, change makers, and community members – united by a shared goal to improve their own and others’ experiences of health and wellbeing.
Partners we naturally align with include organisations in health and related sectors, advocacy and consumer organisations, community groups and condition- and population-specific organisations and groups.
We work with people in formal consumer roles, volunteers, leaders, policy makers, clinicians and researchers.
Where do you work?Improving health and wellbeing requires a wide lens. We see health and wellbeing as more than the absence of illness. It includes living well, free from stigma and discrimination, and addressing social, cultural, environmental, commercial and economic determinants of health – the wider forces and systems that shape our lives. We engage from prevention to early intervention, across treatment, care and support, and across the life course.
How can I get involved as a lived experience leader or community advocate?The best way to stay in touch with us and find out about collaboration opportunities is by signing up to our monthly newsletter, The Chorus.
How do I engage Health Voices Victoria's services?The first step is to email us at healthvoicesvic@deakin.edu.au with a short summary of the support you’re looking for. Someone from our team will then get in touch to chat about your needs and how we can best work with you.
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Our newsletter
Each month we share our Health Voices Chorus newsletter – with our subscribers. In it we share:
- Updates from the team
- Engagement opportunities for consumers and communities
- Resources and events
If you would like to receive this newsletter please subscribe using the form below.
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Resources
Before its closure, Health Issues Centre developed many resources to support healthcare organisations and consumers to partner more effectively. These resources were previously available on the Health Issues Centre website, which has now shut down. We wanted to ensure that these resources were not lost to the sector, so we have created this resource library.
Community Advisory Committee (CAC) EvaluationEvaluation Framework 2022
This framework provides a consistent approach with tools and resources that can be applied or adapted to guide internal evaluation and enable continuous quality improvement of a health service’s Community Advisory Committee.
Evaluation Framework 2022 - PDF, 866 KB
Evaluation Framework 2023
This framework has the same purpose as the 2022 version, inclusive of some updates (reflected on page 3). Updates include additional requirements for co-production with CAC members, further information about project management, program evaluation, the Model for Improvement, measuring and reporting CAC impact, and improved resources.
Evaluation Framework 2023 - DOC, 624 KB
Evaluation Checklist
This checklist helps health services take a planned approach to designing, delivering, and evaluating Community Advisory Committees.
Evaluation Checklist - DOC, 35 KB
Evaluation Plan Template
A ‘living document’ that evolves as the evaluation of the health service Community Advisory Committee progresses. This template can be used to provide clarity on what the evaluation is meant to achieve, detail who is involved, and define key deliverables and timelines.
Evaluation Plan Template - DOC, 87 KB
Evaluation Questions Bank
A tailorable template and a repository for questions that may guide the Community Advisory Committee evaluation process.
Evaluation Questions Bank - DOC, 36 KB
Evaluation Report and Action Plan Template
This template can be populated with information that summarises the findings and recommendations for improvement from the evaluation of a Community Advisory Committee.
Evaluation Report and Action Plan Template - DOC, 35 KB
Stakeholder Engagement Plan Template
This template guides plans to communicate with stakeholders to attain their support for the Community Advisory Committee. It specifies the frequency and type of communications and activities, to build and maintain engagement with the evaluation at all levels.
Stakeholder Engagement Plan Template - DOC, 47 KB
Training slides: Introduction to Program Logic (CAC Evaluation)
An introduction to the purpose, background, theory, outcomes, and implementation of a Community Advisory Committee evaluation process.
Training slides - PDF, 976 KB
Program Logic Template
This template can be used to discuss and document the intention of the Community Advisory Committee evaluation at each stage of the process. It is designed to be used in a workshop with all key representatives and stakeholders involved.
Program Logic Template - DOC, 237 KB
Middlemore Consumer Engagement Questionnaire (MCE-Q)
This questionnaire is designed to help understand the unique perspectives of health consumers who represent their communities in health governance groups.
Questionnaire - PDF, 149 KBInclusive EngagementConsumer Model: Partnering with Healthcare Organisations
“This model highlights the opportunities that exist for consumers to contribute to transformational change of the health system, no matter their level of experience. It outlines how consumers and health organisations can
Consumer Model - PDF, 920 KB
work in an effective partnership that is mutually beneficial”.
Aligning the Partnering with Healthcare framework with the Rainbow Tick
This fact sheet advises health services how to follow Rainbow Tick guidance when developing plans to fulfil the Partnering in Healthcare framework.
Aligning the Partnering with Healthcare framework with the Rainbow Tick - PDF, 995 KB
Guide for Inclusive Community Consultations
This guide is designed for health services staff and outlines the main considerations when undertaking consumer consultations. It covers various methods, planning, risk management, and step-by-step guidance on all stages of the consumer consultation process. This guide is a companion to ‘Guide for Engaging Diverse Consumers in Organisational and Governance Structures 2022’.
Inclusive Community Consultations - PDF, 2 MB
Guide to engaging diverse consumers in organisational and governance structures
This step-by-step guide is designed to be used when consumers are invited to be part of internal structured processes and systems as partners in decision-making in healthcare partnerships. It includes descriptions of the processes, planning stages and methods for engaging with consumers from diverse backgrounds on service governance, design, development, implementation, and evaluation. This guide is a companion to ‘Guide for Inclusive Community Consultations 2022’.
Engaging diverse consumers in organisational and governance structures - PDF, 1 MBConsumers Partnering in HealthConsumer Model: Partnering with Healthcare Organisations
This model highlights the opportunities that exist for consumers to contribute to transformational change of the health system, no matter their level of experience. It outlines how consumers and health organisations can work in an effective partnership that is mutually beneficial.
Consumer Model - PDF, 920 KB
Six steps to successfully onboarding Consumer Advisors
This guide supports health organisations to create processes that ensure consumer advisors are provided with the support, information, and resources that they need to be effective in their advisory roles over the first 6-12 months.
Six steps to successfully onboarding Consumer Advisors - PDF, 2 MB
Six steps to becoming a consumer advisor
A visual resource to help guide people navigating the early stages of becoming a consumer advisor.
Six steps to becoming a consumer advisor - PNG, 169 KB
Consumer Advisor Skills Checklist
This checklist is a way for consumers to reflect on what advisory skills they have developed over time, and what areas they would like to further develop.
Consumer Advisor Skills Checklist - PDF, 309 KB
Consumer Advisor Skills Checklist (Editable)
A word version of the Checklist that can be completed electronically.
Consumer Advisor Skills Checklist - Editable - DOC, 112 KB
Guide for consumers to self-assess the quality of their engagement
This guide supports consumer representatives or advisors to self-assess the quality of their engagement in healthcare organisations.
Guide for consumers to self-assess the quality of their engagement - PDF, 986 KBTraining Others in Consumer EngagementConsumer Engagement Train the Trainer Manual
This manual contains information that will help to train others in consumer engagement. It explores the characteristics of a good trainer, the principles and barries in adult learning and how to address them, developing learning outcomes and training materials, implementing a training program, monitoring and assessing participant learnings, and self-assessing trainer performance. This manual is a companion to ‘Consumer Engagement Train the Trainer Toolkit’.
Consumer Engagement Train the Trainer Manual - PDF, 2 MB
Consumer Engagement Train the Trainer Toolkit
This toolkit supports the trainer in planning, implemetating, and evaluating consumer engagement. A series of consumer engagement tools and templates and consumer engagement support resources are available in this toolkit to help trainers and trainees to implement best practice consumer engagement in organisational committees and governance. This toolkit is a companion to ‘Consumer Engagement Train the Trainer Manual’.
Consumer Engagement Train the Trainer Toolkit - PDF, 2 MB -
Contact us
Get in touch
03 9246 8764
healthvoicesvic@deakin.edu.auDeakin University,
221 Burwood Highway,
Burwood VIC, 3125